Questionnaires and instruments in the social domain

This table gives an overview of the questionnaires and measurement instruments commonly used to provide an objective view of the social status that are relevant for dietitians
QuestionnaireTarget groupScore range and cut-off point
AqoLQ Asthma Quality of Life QuestionnaireAdult asthma patientsAverage of 32 questions (ordinal scale 1-7)
A higher score corresponds to a better quality of life
CD-QoL Celiac Disease related Quality of LifeCeliac patients20-100
A lower score corresponds to a better quality of life
CFQ Cystic Fibrosis QuestionnaireCystic fibrosis patients0-100
A higher score corresponds to a better quality of life
CHQ form 87 Child Health QuestionnaireChildren 10-18 years old87 questions (12 domains)
A higher score corresponds to a better quality of life
EORTC-QLQ European Organization for Research and Treatment of Cancer, Quality of Life Questionnaire for patients with cancerCore questionnaire: EORTC-QLQ-C30 Disease-specific modules:
LC13=lung
BR23=breast
H&N35=head and neck
OV28=ovary
OES18=esophagus
STO2=stomach
CX24=cervix
MY20=multiple myeloma
OG25=esophagus/stomach
PR25=prostate
LMC21=colon-rectal-liver metastases
CR29=colon-rectal
BN20=brain tumor
EN24=endometrium
INFO25=information provision for patients
BM22=bone metastases
HCC18=hepatocellular
GI.NET21=carcinoid/neuro-endocrine
1-100, reference range per type of cancer
A higher score corresponds to a better quality of life
On the symptom scale, a higher score corresponds to more symptoms
EQ5D/EuroQolGeneral state of health and quality of life, can be completed by the patient0-100 (none, slight, moderate, severe, very severe problems)
Domains: mobility, self-care, activities, pain, fear/depression
ESAS Edmonton Symptom Assessment SystemCancer patients0-10, in 9 symptoms
A lower score corresponds to a better quality of life
GIQLI The Gastrointestinal Quality of Life IndexPatients with gastrointestinal diseasesFour domains: physical well-being, psychological well-being, mental well-being, and digestion and defecation.
IBDQoL Inflammatory Bowel Disease Quality of Life QuestionnairePatients with chronic inflammatory bowel diseases1-7
A higher score corresponds to a better quality of life
IBS-36 Irritable Bowel Syndrome 36 itemsPatient with irritable bowel syndrome0-100
A lower score corresponds to a better quality of life
KDQOL-SF™ Kidney disease quality of life instrumentPatients with kidney disease0-100
Based on the RAND 36 or SF-36, supplemented with burden of disease, symptoms and effects of the kidney disease.
A higher score corresponds to a better quality of life
PedsQL Pediatric Questionnaire Quality of LifeChildren (questions for 3 age categories)
5-7 years (completed by parents), 8-12 and 13-18 years
23 questions
A higher score corresponds to a better quality of life
SF-36/RAND-36 36-item Short-form Health SurveyGeneral quality of life0-100 per dimension (physical, mental, and social health)
A higher score corresponds to a better state of health
Cut-off points per norm group
SF-12 12-item Short-form Health SurveyGeneral quality of life (shortened version of SF-36)0-100 per dimension (physical, mental, and social health)
A higher score corresponds to a better state of health
Cut-off points per norm group
TAPQoL TNO-AZL Questionnaire for Pre-school Children's Health-Related Quality of LifeChildren from 6 months to 6 years with a chronic condition (and parents) 43 questions on 12 scales form a profile together
A higher score corresponds to a better quality of life

Een hogere score betekent een betere kwaliteit van leven
TACQoL TNO-AZL Questionnaire for Children's Health-Related Quality of LifeChildren aged 5-15 years with a chronic condition (and parents)7 scales form a profile together
A higher score corresponds to a better quality of life
TAAQoL TNO-AZL Questionnaire for Adult's Health-Related Quality of LifeAdolescents and adults ≥16 years with a chronic condition12 scales form a profile together
A higher score corresponds to a better quality of life

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